Themed Issue – Patient and Public Involvement in
Health Economics Research (HEOR)
The disability movement first coined the phrase “Nothing about us without us” in the 1990s. Since then, the idea has widened and public and patient involvement (PPI) in health research has grown to be the norm. Patients and the public are no longer merely subjects or recipients of health economics and outcomes research (HEOR), we are now engaging with them as active research partners and collaborators, including as co-investigators and co-authors.
The Patient invites the submission of papers (original research, reviews and commentaries) on the role of patients and the general public in HEOR for a themed issue of the journal to be published in early 2020, guest edited by Paula Lorgelly (King’s College London).
We encourage papers that highlight innovative ways researchers have engaged patients and/or the public, projects that have trained patients/the public in order to increase their understanding of HEOR, and papers that have measured and quantified the value of patient/public engagement to their project. Country-specific perspectives are also encouraged particularly given that different funding bodies have varying requirements and standards regarding PPI. Papers can be either methodological or applied. Article types can be original research, thought pieces or reviews.
Topics of interest include:
- Patients and the public as collaborators, including generating research questions
- Patients and the public as trialists or modellers, i.e. designing methods
- Training patients and the public to increase/improve their value to projects
- Comparison of different engagement approaches, including PPI in HEOR projects vs other types of studies
- Comparisons of projects involving patients versus those involving the public
- Lay patients vs professional patients
- The role of patient groups and/or research charities
- PPI and conflicts of interest
- Risks and benefits of greater PPI in HEOR
Note we are specifically interested in the role of patients and the public in HEOR; papers either on PPI in funding decisions (for research funding or technology adoption) or on outcome measures that are not preference based or use patient values while of interest to the journal are outside of the scope of this themed issue.
Please submit an abstract describing your proposed paper by 31st August 2019 to firstname.lastname@example.org. Full papers will be invited by 30th September 2019 and manuscripts due early 2020.